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	<title>Disabled Dad</title>
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	<description>Disabled daughter now has a disabled dad</description>
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	<title>Disabled Dad</title>
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	<item>
		<title>Eighty percent</title>
		<link>https://disableddad.com/eighty-percent/</link>
					<comments>https://disableddad.com/eighty-percent/#comments</comments>
		
		<dc:creator><![CDATA[DisabledDad]]></dc:creator>
		<pubDate>Thu, 21 Mar 2019 02:46:41 +0000</pubDate>
				<category><![CDATA[Uncategorized]]></category>
		<guid isPermaLink="false">https://disableddad.com/?p=1172</guid>

					<description><![CDATA[A quick note before the slivovitz kicks in &#8230; I went for a CT scan today at 10:15 in the morning (and that post will be up soon about that boondoggle) and then met with my oncologist and the surgeon at 2:30. This is the first scan since the &#8220;treatments&#8221; and is very important to [&#8230;]]]></description>
										<content:encoded><![CDATA[<p>A quick note before the <a href="https://www.tabletmag.com/scroll/169063/in-praise-of-slivovitz">slivovitz</a> kicks in &#8230;</p>
<p>I went for a CT scan today at 10:15 in the morning (and that post will be up soon about that boondoggle) and then met with my oncologist and the surgeon at 2:30. This is the first scan since the &#8220;treatments&#8221; and is very important to see if the cancer has spread. I will have such testing every three months for two years, then twice a year.</p>
<p>Punchline &#8211; the scan was clear, no evidence of cancer anywhere. And my blood test for the CEA marker (want it under 5, was 31 when all this started) is 1.7. I am cancer free. Today. Also, as of today, I have an 80% chance of survival, which is statistical shit that does not really mean much, but is nice to hear. Every day I am cancer free that number goes up.</p>
<p>Cancer free.</p>
<p>That necessitates another shot of slivovitz, don&#8217;t you think?</p>
<p>(But there is a ways to go, more surgery and even a colonoscopy in three weeks, no prep needed &#8230;)</p>
<p>&nbsp;</p>
<p>&nbsp;</p>
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		<item>
		<title>All the world’s a stage (part II) &#8230;</title>
		<link>https://disableddad.com/all-the-worlds-a-stage-part-ii/</link>
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		<dc:creator><![CDATA[DisabledDad]]></dc:creator>
		<pubDate>Wed, 13 Mar 2019 00:00:27 +0000</pubDate>
				<category><![CDATA[My body]]></category>
		<category><![CDATA[My dealing with it]]></category>
		<guid isPermaLink="false">https://disableddad.com/?p=1156</guid>

					<description><![CDATA[As my childhood friend the Bard said: All the world’s a stage, And all the men and women merely players; They have their exits and their entrances, And one man in his time plays many parts, &#8230; From cancer.gov: There are many staging systems. Some, such as the TNM staging system, are used for many [&#8230;]]]></description>
										<content:encoded><![CDATA[<p>As my childhood friend the Bard said:</p>
<blockquote><p>All the world’s a stage,<br />
And all the men and women merely players;<br />
They have their exits and their entrances,<br />
And one man in his time plays many parts, &#8230;</p></blockquote>
<p>From cancer.gov:</p>
<blockquote><p>There are many staging systems. Some, such as the TNM staging system, are used for many types of cancer. Others are specific to a particular type of cancer. Most staging systems include information about:</p>
<ul>
<li>Where the tumor is located in the body</li>
<li>The cell type (such as, adenocarcinoma or squamous cell carcinoma)</li>
<li>The size of the tumor</li>
<li>Whether the cancer has spread to nearby lymph nodes</li>
<li>Whether the cancer has spread to a different part of the body</li>
<li>Tumor grade, which refers to how abnormal the cancer cells look and how likely the tumor is to grow and spread</li>
</ul>
<p>One system used is this:</p>
<table class="table-default">
<tbody>
<tr>
<th scope="">Stage</th>
<th scope="">What it means</th>
</tr>
<tr>
<td>Stage 0</td>
<td>Abnormal cells are present but have not spread to nearby tissue. Also called carcinoma in situ, or CIS. CIS is not cancer, but it may become cancer.</td>
</tr>
<tr>
<td>Stage I, Stage II, and Stage III</td>
<td>Cancer is present. The higher the number, the larger the cancer tumor and the more it has spread into nearby tissues.</td>
</tr>
<tr>
<td>Stage IV</td>
<td>The cancer has spread to distant parts of the body.</td>
</tr>
</tbody>
</table>
</blockquote>
<p>At the first <a href="https://disableddad.com/cerberus/">cerberus appointment</a> we were told that I had stage III cancer, but that it was &#8220;just&#8221; stage III, close to stage II. That was not real reassuring but it was something to hold on to.</p>
<p>After surgery the surgeon said reported that pathology determined there were &#8220;clean margins.&#8221; What the heck does that mean?</p>
<p>Imagine the yolk is a tumor:</p>
<p><img decoding="async" loading="lazy" class="aligncenter size-full wp-image-1157" src="https://disableddad.com/wp-content/uploads/2019/03/egg.png" alt="" width="250" height="199" /></p>
<p>And the doctor is about to cut it out. First he adds some salt and pepper and then starts cutting. The idea is to get the entire tumor and then send what is cut out to pathology. They prefer hot sauce on their eggs, but then, they are pathologists.</p>
<p>In order to be sure the doctor got every bit of the tumor, they will look closely at the area the doctor cut. There should be a layer of white and no yellow showing. Any yellow showing means that the yellow, i.e. tumor, was cut and there are some tumor cells left in the patient.</p>
<p><img decoding="async" loading="lazy" class="aligncenter size-full wp-image-1158" src="https://disableddad.com/wp-content/uploads/2019/03/egg2.png" alt="" width="280" height="255" /></p>
<p>This is an example where there is not a clean margin on the right of this picture, hence some tumor is still in the rest of the fucking colon and I picked the wrong surgeon. And now I&#8217;m hungry.</p>
<p>We had clean margins. I did not say &#8220;duh&#8221; as he took out about 12 inches of colon and the cancer was more like 3 inches or something like that.</p>
<blockquote><p><dfn data-cdr-id="45762">lymph node </dfn>(limf node) A small bean-shaped structure that is part of the body’s immune system. Lymph nodes filter substances that travel through the lymphatic fluid, and they contain lymphocytes (white blood cells) that help the body fight infection and disease. There are hundreds of lymph nodes found throughout the body. They are connected to one another by lymph vessels. Clusters of lymph nodes are found in the neck, axilla (underarm), chest, abdomen, and groin. For example, there are about 20-40 lymph nodes in the axilla. Also called lymph gland.</p></blockquote>
<p>The surgeon also removed some of the lymph nodes that are involved with the part of the colon I used to have. I was told that there is more concern when five or more lymph nodes have cancer cells. Four of mine did.</p>
<blockquote><p>&#8230; His acts being seven ages. At first, the infant,<br />
Mewling and puking in the nurse’s arms.<br />
Then the whining schoolboy, with his satchel<br />
And shining morning face, creeping like snail<br />
Unwillingly to school. And then the lover,<br />
Sighing like furnace, with a woeful ballad<br />
Made to his mistress’ eyebrow. Then a soldier,<br />
Full of strange oaths and bearded like the pard,<br />
Jealous in honor, sudden and quick in quarrel,<br />
Seeking the bubble reputation &#8230;</p></blockquote>
<p>And that is all I knew going into chemotherapy, the last of the triad &#8230;</p>
<p style="text-align: center;">chemo-radiation : surgery : chemotherapy</p>
<p>I was at one of my every-two-week appointments to get infused. The protocol is I go in and first they hook up to my port and take blood for testing. I meet the doctor afterwards and if the blood tests are &#8220;good&#8221; I then got two hours of IV, only to go home for 48 hours with a pump continually infusing me more. Luckily Quinilla (Dr. Pye) was back from her leave and I met with her for the majority of the appointments.</p>
<p>I don&#8217;t remember how it came up (keep it clean) but we were talking about my current symptoms and whatever, and then she said it.</p>
<blockquote><p>The final determination on staging was IIIc.</p></blockquote>
<p>That is the highest stage short of stage IV (spread to other organs).</p>
<p><img decoding="async" loading="lazy" class="aligncenter wp-image-1162 size-full" src="https://disableddad.com/wp-content/uploads/2019/03/stageIIIc.png" alt="" width="767" height="458" srcset="https://disableddad.com/wp-content/uploads/2019/03/stageIIIc.png 767w, https://disableddad.com/wp-content/uploads/2019/03/stageIIIc-300x179.png 300w" sizes="(max-width: 767px) 100vw, 767px" /></p>
<p>So that was a surprise. My head was spinning a bit and somehow, as stupid as it was, we got on the subject of survival rates. Stage III has around a 70% five-year survival rate. Stage IV is around 20%.</p>
<p>Had I waited much longer for my colonoscopy I would be dealing with a 20% survival rate. Definitely a 12 on the what-the-fuck-o-meter.</p>
<p><img decoding="async" loading="lazy" class="aligncenter size-full wp-image-1163" src="https://disableddad.com/wp-content/uploads/2019/03/survival_rates.png" alt="" width="612" height="378" srcset="https://disableddad.com/wp-content/uploads/2019/03/survival_rates.png 612w, https://disableddad.com/wp-content/uploads/2019/03/survival_rates-300x185.png 300w" sizes="(max-width: 612px) 100vw, 612px" /></p>
<p>&nbsp;</p>
<blockquote><p>&#8230; Even in the cannon’s mouth. And then the justice,<br />
In fair round belly with good capon lined,<br />
With eyes severe and beard of formal cut,<br />
Full of wise saws and modern instances;<br />
And so he plays his part. The sixth age shifts<br />
Into the lean and slippered pantaloon,<br />
With spectacles on nose and pouch on side;<br />
His youthful hose, well saved, a world too wide<br />
For his shrunk shank, and his big manly voice,<br />
Turning again toward childish treble, pipes<br />
And whistles in his sound. Last scene of all,<br />
That ends this strange eventful history,<br />
Is second childishness and mere oblivion,<br />
Sans teeth, sans eyes, sans taste, sans everything.</p></blockquote>
<p>-As You Like It, Act II, Scene VII [All the world’s a stage]<br />
William Shakespeare, aka the Bard</p>
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		<title>It was a sucker pouch. But you know who gets hit by sucker pouches? Suckers.</title>
		<link>https://disableddad.com/it-was-a-sucker-pouch-but-you-know-who-gets-hit-by-sucker-pouches-suckers/</link>
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		<dc:creator><![CDATA[DisabledDad]]></dc:creator>
		<pubDate>Wed, 06 Mar 2019 00:57:53 +0000</pubDate>
				<category><![CDATA[My body]]></category>
		<category><![CDATA[My dealing with it]]></category>
		<guid isPermaLink="false">https://disableddad.com/?p=1147</guid>

					<description><![CDATA[I got a call last week. I am calling to schedule your test. What test? I have no idea what you are talking about. Your pouchgram. How is next Tuesday at 10:30? Remember that I have an ostomy, my colon is diverted to the front of my belly and I have a bag (or pouch) [&#8230;]]]></description>
										<content:encoded><![CDATA[<p>I got a call last week.</p>
<blockquote><p>I am calling to schedule your test.</p></blockquote>
<blockquote><p>What test? I have no idea what you are talking about.</p></blockquote>
<blockquote><p>Your pouchgram. How is next Tuesday at 10:30?</p></blockquote>
<p>Remember that I have an ostomy, my colon is diverted to the front of my belly and I have a bag (or pouch) attached that catches my, well, poop. That&#8217;s the only pouch I know.</p>
<blockquote><p>Can you tell me what a pouchgram is?</p></blockquote>
<blockquote><p>It&#8217;s a sleep study.</p></blockquote>
<blockquote><p>Excuse me? What?</p></blockquote>
<blockquote><p>No, never mind. I am not sure what it is.</p></blockquote>
<blockquote><p>Who ordered it?</p></blockquote>
<blockquote><p>(she names a nurse practitioner)</p></blockquote>
<blockquote><p>Whatever. Sure, next Tuesday.</p></blockquote>
<p>No preparation information. No mail or email like most other appointments. All I know is to show up on the fourth floor which I obediently do. Hmmmm, the breast clinic or radiology? I try radiology. And yes, the guy tells me I am in the right place. Damn.</p>
<p>Someone comes out and takes me to a small changing room and tells me to get undressed from the waist down and put on a gown. I ask what the test is about, he says it is to check my pouch. Ok &#8230;</p>
<p>I wait while wearing the gown and then get brought in to a room with an xray type machine. I ask the tech what the test is and he just looks at me. I tell him I have no idea. He says he will get the doctor.</p>
<p>An Indian woman (yes, it is relevant that she is Indian) comes in. She too is surprised I have no idea what this is about and tells me that I am free to leave and do it another time. I just asked what it is about.</p>
<blockquote><p>To check your pouch.</p></blockquote>
<p>Right, my pouch is fine and I show her.</p>
<blockquote><p>Not that pouch. The one the doctor created during your surgery.</p></blockquote>
<p>The doctor removed about a foot of my colon, starting just inside my butt and removed my rectum and part of the descending colon. He then brought the remaining part of the colon down towards my butt and reconnected it. In that area he did something that will hopefully work like my rectum did (where your poop is when you are scrambling to find a restroom). And guess what they call that &#8230; go ahead, guess. Yes, a <em>pouch</em>.</p>
<blockquote><p>We are going to inject a contrast solution and take pictures of your colon to make sure there are no leaks.</p></blockquote>
<blockquote><p>Inject?</p></blockquote>
<blockquote><p>Not with an IV.</p></blockquote>
<blockquote><p>In my asshole?</p></blockquote>
<blockquote><p>We like to use more technical terms here.</p></blockquote>
<blockquote><p>Ok, my butthole?</p></blockquote>
<blockquote><p>Yes.</p></blockquote>
<p>So there I am, again on one of those tables, this time with contrast going in my butt, a floroscope showing what is going on in real-time.</p>
<p>I ask the doctor where she is from and for the next 15 minutes during the test we discuss my two trips to India, great distraction for me, hopefully not for her.</p>
<p>No leaks, that&#8217;s good news.</p>
<hr />
<p>I owe you all an apology. I know I disappeared and that was not right. I also assume you understand or will.</p>
<p>Chemotherapy is not easy. Having cancer is not easy. Being disabled is not easy. Things suck sometimes.</p>
<p>I am told, and know from some personal knowledge, that my trek through chemo went easier than for many other people. Everyone (doctors included) is amazed that I never needed the anti-nausea medications. I was continually told how great I looked. People were amazed to see me on errands or what have you. But I felt like shit. And it got worse by the day.</p>
<p>I have had peripheral neuropathy for years (numbness, tingling, occasional break through pain) in my feet. It progressively got worse (expected and watched) but since I have been dealing with it, I could continue to. It also manifested in the outer side of my left hand, making typing &#8220;q&#8221; or &#8220;a&#8221; difficult! And the exhaustion. The total, devastating exhaustion. I would lie down multiple times during the day.</p>
<blockquote><p>I feel like a 60 year old when I go up a flight of stairs.</p></blockquote>
<p>My oncologist (yes, Dr. Pye) looked at me, looked at my chart, and gave me a smirk (I <em>am</em> 60).</p>
<p>I have spent most of the last few months exhausted. Any (and all) skin conditions I ever had came back in a vengeance (also expected). The skin on my hands is tight and extremely dry, cracking, and often painful.</p>
<p>And I could not get myself to blog. I am sorry. For me, and for you.</p>
<p>The symptoms should have peaked last week or so, I have been off chemo for three weeks, and hopefully forever. In three weeks I have a CT scan to check my liver and lungs, and another cerberus appointment, the three doctors telling me what is to come. They will hopefully say we will reverse the ostomy so I can properly start using my butt again and get back to life.</p>
<p>My fear? Since my healthy cells were able to survive through chemo better than many other people&#8217;s, does this mean that my cancer cells (the target of the chemo) were able to as well? Dr. Pye says there is no correlation.</p>
<p>No one knows if there were any stray cancer cells in my body after surgery. We did chemo anyway in an effort to make sure none were around. The whole thing really really sucked. But this stage is over and I am still on the right side of the ground.</p>
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		<title>Thanksgiving</title>
		<link>https://disableddad.com/thanksgiving/</link>
					<comments>https://disableddad.com/thanksgiving/#comments</comments>
		
		<dc:creator><![CDATA[DisabledDad]]></dc:creator>
		<pubDate>Sat, 24 Nov 2018 03:33:37 +0000</pubDate>
				<category><![CDATA[My body]]></category>
		<category><![CDATA[My dealing with it]]></category>
		<guid isPermaLink="false">https://disableddad.com/?p=1137</guid>

					<description><![CDATA[Words of wisdom, or not, for the Thanksgiving holiday. Yes, I am thankful that I am still alive. I am thankful for the incredible support from Inanna. A quick check of on-line dictionaries and I find that yes, unthankful is a word. un·thank·ful /ˌənˈTHaNGkfəl/ adjective not feeling or showing pleasure, relief, or gratitude. There is [&#8230;]]]></description>
										<content:encoded><![CDATA[<p>Words of wisdom, or not, for the Thanksgiving holiday.</p>
<p>Yes, I am thankful that I am still alive. I am thankful for the incredible support from Inanna.</p>
<p>A quick check of on-line dictionaries and I find that yes, <em>unthankful</em> is a word.</p>
<blockquote><p><strong>un·thank·ful</strong><br />
/ˌənˈTHaNGkfəl/<br />
<em>adjective</em><br />
not feeling or showing pleasure, relief, or gratitude.</p></blockquote>
<p>There is a lot I am unthankful for as well. I sit here at the end of two rounds of chemotherapy. I go in on a Monday and get blood tests, two hours of infusion and go home with an infusion pump for 46 hours of continuous further administration of chemo. A visiting nurse removes the pump on Wednesday afternoon. Eleven days goes by with no chemo entering my body, just chemo continuing to fuck me up. Did that twice, going again this Monday to start round 3.</p>
<p>The first round went fairly well, minimal side effects. The second round, not so much. Cold feels like an electric shock, queasiness is Bob to my Leo &#8230;</p>
<p><iframe loading="lazy" width="640" height="480" src="https://www.youtube.com/embed/0pKymngWgJw?feature=oembed" frameborder="0" allow="accelerometer; autoplay; encrypted-media; gyroscope; picture-in-picture" allowfullscreen></iframe></p>
<p>I have a taste in my mouth that never goes away. If it was chocolate or coffee, I could deal. It is more like a cross between yeech and blech. Yes, I have tried mints, citrus fruits, alcohol, Altoids, pizza, licking random walls, and smothering myself with a pillow. Did you ever notice that you can&#8217;t smother yourself with a pillow. Why is that?</p>
<p>I spend a good amount of time in bed because of the fairly pervasive tiredness. Ginger is my best friend.</p>
<p><img decoding="async" loading="lazy" class="aligncenter size-medium wp-image-1139" src="https://disableddad.com/wp-content/uploads/2018/11/ginger-300x251.png" alt="" width="300" height="251" srcset="https://disableddad.com/wp-content/uploads/2018/11/ginger-300x251.png 300w, https://disableddad.com/wp-content/uploads/2018/11/ginger.png 546w" sizes="(max-width: 300px) 100vw, 300px" /></p>
<p>No, not that Ginger, besides I was more of a (I Dream of) Jeannie kind of guy. Ginger tea or crystallized ginger, and sublingual marijuana hold it at bay, sort of. I do take some of the meds I have when it gets bad, but that is not too often. Most of the time it is like annoying background noise. Any quiet moment I notice that, well, I am wondering where the railing is in case I need to bend over it and toss my cookies.</p>
<p>There are wonderful people in my community who have brought food to the house or send restaurant gift cards, etc. I cannot say how wonderful this really is &#8230; my appetite is all over the map but it takes that much more off Inanna&#8217;s plate, and that is really important. I am dealing with the brunt of this physically, but for her there is the mental / emotional part. She has trouble seeing me hurt. And, for whatever reason, she surely does not want to see me die. Lightening her load in any way is so appreciated.</p>
<p>I mentioned in a previous post that my CEA was 31 in the beginning of this journey. This is a blood marker for my tumor, one wants the number below 5. My was 31 because, well, I had a cancerous tumor. After chemo-radiation it went down to 19 or something like that. The doctors had hoped for a lower value, chemo-radiation was not as effective as one would hope. We now test the value once a month, the first was the first day of post-surgery chemo, six weeks after surgery. The doctors were hoping for five, I was hoping for zero. It was 1.6 which is wonderful (it will never be zero). That basically means that I don&#8217;t have a rouge tumor growing somewhere from the same cancer. Yes, I still have stray cancer cells floating around (like seeds) and the current chemo is designed to get rid of them. But that news was great. It will be tested again this Monday.</p>
<p>Mom came to visit for Thanksgiving. My sister (lives locally), Inanna, our two girls, mom, and I all went to my sister-in-law&#8217;s for dinner. She is an incredible hostess (and kudo&#8217;s to her husband as well). There was one toast, and it started with appreciation that I am still alive. And there was turkey. Go figure.</p>
<p>I am trying to keep busy to distract from the side effects. One other one is that my butt-hole still hurts. Not awful, but yeah, it just hurts. I can&#8217;t blame it, but I can curse it. And I do. Maybe this is where the expression &#8220;fucking asshole&#8221; comes from. I do find it ironic that I was never one into passively <a href="https://en.wikipedia.org/wiki/Figging" target="_blank" rel="noopener">figging</a> but now my life is consumed with it&#8217;s constituent parts.</p>
<p>I am unthankful for</p>
<ul>
<li>6 more chemo cycles to go</li>
<li>medical science&#8217;s level of barbarism</li>
<li>the accident last night at 3 am, let&#8217;s just say it shit-the-bed</li>
<li>the pain in my ass</li>
<li>what this is doing to those I love and care about most</li>
</ul>
<p>I am thankful for:</p>
<ul>
<li>Inanna</li>
<li>a cea of 1.6</li>
<li>two chemo cycles down</li>
<li>friends and even some people I don&#8217;t know for their kindness and support</li>
<li>medical science, no matter how barbaric it may be</li>
<li>waking up every morning, being a man or not</li>
<li>for whatever reason, I look better than people expect (no clue what they expect)</li>
</ul>
<p>Yes, I know, it could be worse. But it could be a hell of a lot better, no?</p>
<p>We go on. It is better than dead. I can survive another 6 rounds of chemo I am sure. And if it ups my chance of long term survival (dare I say <em>cure</em>?) then it is worth every moment of queasiness, every bit of exhaustion, and an annoying butt-hole.</p>
<p>Be thankful. All in all, I am.</p>
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		<title>&#8220;I think of my body as a side effect of my mind.&#8221; ~Carrie Fisher</title>
		<link>https://disableddad.com/i-think-of-my-body-as-a-side-effect-of-my-mind-carrie-fisher/</link>
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		<dc:creator><![CDATA[DisabledDad]]></dc:creator>
		<pubDate>Fri, 26 Oct 2018 23:56:09 +0000</pubDate>
				<category><![CDATA[My body]]></category>
		<category><![CDATA[My dealing with it]]></category>
		<guid isPermaLink="false">https://disableddad.com/?p=1124</guid>

					<description><![CDATA[The whole concept of side effects is bizarre. I guess nothing good comes without something bad. A typical list for just about any medication or procedure looks something like this: Side effects are uncommon, and include headache, nausea, stigmata, vomiting, death, dizziness, vaginal ejaculations, dysentery, cardiac arrhythmia, mild heart explosions, varicose veins, darkened stool, darkened [&#8230;]]]></description>
										<content:encoded><![CDATA[<p>The whole concept of side effects is bizarre. I guess nothing good comes without something bad. A typical list for just about any medication or procedure looks something like this:</p>
<blockquote><p>Side effects are uncommon, and include headache, nausea, stigmata, vomiting, death, dizziness, vaginal ejaculations, dysentery, cardiac arrhythmia, mild heart explosions, varicose veins, darkened stool, darkened soul, lycanthropy, trucanthropy, more vomiting, arteriosclerosis, hemorrhoids, diabetes, virginity, mild discomfort, vampirism, gender impermanence, spontaneous dental hydroplosion, sugar high, even more vomiting, brown, your mom, and mild rash.</p></blockquote>
<p>When I was warned about the side effects of radiation (and had to sign off that I acknowledged them) I was told that colorectal cancer was a potential side effect! I was lucky, I did not get too many side effects during the chemo-radiation portion of my journey. That bodes well for the chemo that I am starting on Monday.</p>
<p>The surgeon went over a list of potential side effects from the surgery when I had to sign that consent. It was a typical list including infection, death, impotence, blockages, etc. Pretty much a list of awful things but seeing that the alternative would be death by cancer, I smiled and signed.</p>
<p>I got hit with a good amount (well, a <em>bad</em> amount actually) of side effects after the surgery. I had two blockages in my small intestine that caused all sorts of other issues. It was fairly awful but I made it through, and that is pretty much all that counts.</p>
<p>One of the side effects that was emphasized a bit more than the others during that early visit was <em>impotence</em>. In case you are not sure what I am talking about &#8230;</p>
<ul>
<li>Erectile dysfunction</li>
<li>180 degrees shy of heaven</li>
<li>Performing with Flacido Domingo</li>
<li>A few parts shy of an erector set</li>
<li>Sch-wing and a miss</li>
<li>Not rising to the level of impeachable offence</li>
<li>The Null Monte</li>
<li>Disappointing Miss Daisy</li>
<li>Taking the gold at the Lake Flaccid Olympics</li>
<li>Ascension Deficit Disorder</li>
<li>Bouncing the Check of Love</li>
<li>Less-than-Magic Johnson</li>
<li>All Doled up with nowhere to go</li>
<li>Welcome to Flaccid City. Population: You</li>
<li>Serving boneless pork</li>
<li>Unleavened Man-Bread</li>
</ul>
<blockquote><p>Impotence is the inability for a man to get and maintain an erection. It is also known as erectile dysfunction and can impact a person&#8217;s ability to have satisfactory sexual intercourse.</p></blockquote>
<p>The doctor did mention that we now have drugs that can help with that if it comes to fruition since the cause would be nerve damage from the surgery.</p>
<p><em>No big deal</em> I thought. Well, to be clear, it would be a <em>big</em> deal, but I mean ok, I can handle that, um, I mean I can deal with it. And so can Inanna. After all, better limp than dead I always say.</p>
<p>I have been lucky, I only dealt with not rising to the occasion once, and having just turned 60 that is pretty amazing. I was a young college professor and had three wisdom teeth out one morning. That afternoon the dean&#8217;s very enticing secretary came by to check on how I was doing. One thing led to another and, well, I found out that heavy pain medications in those days had a direct effect on one&#8217;s (ok, <em>my</em>) ability to <em>rise</em> to the occasion.  I actually found it very funny (really). Not sure she did, she never checked in on me again. It was all probably for the best since I was not tenured and the dean was not real fond of me to start with. Anyway, I digress &#8230;</p>
<p>There is something about having a <del>hard</del> difficult time recovering from colorectal surgery, dealing with a stoma and ostomy bag, and in general one&#8217;s mindset with all of this, that keeps one&#8217;s libido in check. Whether or not I had this particular side effect was not much on my mind. Until it was back on my mind. I hit me hard as the thoughts rose in my mind, hardening my intent to figure out if my stoma was going to be the only thing sticking out from my body for the rest of my days.</p>
<p>I thought about it for a couple of days, willing willy to show me his stuff. Nothing. I revisited the fantasies of being Carlo Ponti &#8230; to no avail. I spent an hour in my shrine to Brigitte Bardot &#8230; nothing. Figuring the usuals did not work, I tried reverse psychology and Googled &#8220;naked Kardashians&#8221; &#8230; that only reignited my nausea side effect. Ugh. Yeah, a big nothing.</p>
<p>That evening I really needed to know. I took off my big-man panties and decided there is only one way to find out.</p>
<p>The scene was caught on one of the many nanny cams in the house. Here is the footage of me and Inanna the other night.</p>
<p><iframe loading="lazy" width="640" height="360" src="https://www.youtube.com/embed/E81ICJywqwg?feature=oembed" frameborder="0" allow="autoplay; encrypted-media" allowfullscreen></iframe></p>
<p>Great singing voice she has, no?</p>
<p>I guess if there is one side effect I could choose not to get, other than death or stigmata, this would be high on my list.</p>
<p>Yes, it&#8217;s a big deal. Yes, you can all stop worrying about it, I have.</p>
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		<title>All the world&#8217;s a stage</title>
		<link>https://disableddad.com/all-the-worlds-a-stage/</link>
					<comments>https://disableddad.com/all-the-worlds-a-stage/#comments</comments>
		
		<dc:creator><![CDATA[DisabledDad]]></dc:creator>
		<pubDate>Sun, 21 Oct 2018 00:16:44 +0000</pubDate>
				<category><![CDATA[My body]]></category>
		<category><![CDATA[My dealing with it]]></category>
		<guid isPermaLink="false">https://disableddad.com/?p=1119</guid>

					<description><![CDATA[The day I left the hospital for the second time was the same day I was scheduled to have my follow-up appointment with the surgeon. We agreed to reschedule that, and I never heard. About a week later I sent a message to both the surgeon and my chemo doctor that I had no appointments [&#8230;]]]></description>
										<content:encoded><![CDATA[<p>The day I left the hospital for the second time was the same day I was scheduled to have my follow-up appointment with the surgeon. We agreed to reschedule that, and I never heard. About a week later I sent a message to both the surgeon and my chemo doctor that I had no appointments scheduled and I don&#8217;t know when chemo was supposed to start.</p>
<p>Two days later I got a call and we scheduled an appointment with both the surgeon and the chemo doctor.</p>
<p>The first words from the surgeon were:</p>
<blockquote><p>So what is my name on your blog?</p></blockquote>
<p>Wonderful. I told him &#8220;<a href="https://en.wikipedia.org/wiki/John_Hunter_(surgeon)" target="_blank" rel="noopener">John Hunter</a>,&#8221; and he smiled, then got down to business.</p>
<p>He asked how I am feeling and if I have any pain. I told him that I really have not had any pain since the surgery except for the fact that my asshole hurts <em>all the time</em>.</p>
<p>The good news is that I am in remission.</p>
<blockquote><p><dfn data-cdr-id="45867"><strong>remission</strong> </dfn><a id="ctl36_ctl00_termDictionaryDefinitionView_ctl00_pronunciationLink" class="CDR_audiofile" href="https://www.cancer.gov/PublishedContent/Media/CDR/media/731255.mp3"><span class="hidden">listen</span></a> (reh-MIH-shun) A decrease in or disappearance of signs and symptoms of cancer. In partial remission, some, but not all, signs and symptoms of cancer have disappeared. In complete remission, all signs and symptoms of cancer have disappeared, although cancer still may be in the body. ~<a href="https://www.cancer.gov/publications/dictionaries/cancer-terms/def/remission" target="_blank" rel="noopener">National Cancer Institute at NIH</a></p></blockquote>
<p>Both doctors agree that a dozen years ago they would have stopped treatment at this point.</p>
<p>The pathology report had several important findings:</p>
<ul>
<li>Clean margins &#8211; the surgery removed the entire tumor</li>
<li>Four lymph nodes were affected</li>
<li>The tumor did not respond as well as hoped to the chemo-radiation</li>
</ul>
<p>So what does this mean? A lot, actually. If five or more lymph nodes are affected they get more concerned. I had four. The fact that the tumor did not respond as well as we hoped means that we need to be a bit more aggressive with the next step to eliminate any cancer still hanging around in my body.</p>
<p>Additionally, now that they have a direct analysis of the tumor and surrounding area (as opposed to imaging) the original staging determination is re-visited. I was told that the cancer was Stage IIIB it has now been staged at IIIC.</p>
<p>You may ask what this means for me? Actually, it does not mean shit (so to speak). Technically it is how far the tumor affected the layers of the wall of the colon, the lymph node involvement, etc. What does it mean for my survival? Nothing. Unless there is 0% survival, it means nothing (and there are very good survival rates).</p>
<p>Taking all this into account, the team of doctors have decided that I will have four months of chemotherapy. Because the tumor&#8217;s response to the 5-FU sucked (my word, their implication) they want to start sooner rather than later and be fairly aggressive. I will be starting chemotherapy in a week.</p>
<p>The treatment is called <a href="https://en.wikipedia.org/wiki/FOLFOX" target="_blank" rel="noopener">folfox6</a> and consists of three drugs, one of them being my friend 5-FU. I will go in on a Monday and get a blood test then an IV for several hours. After this I will get my friend the pump back and I can go home while getting a stronger dose of 5-FU for the next 46 hours. On Wednesday the pump is disconnected and I have nothing for the next 11 days. That is one cycle, it will then repeat for a total of 8 times, 4 months.</p>
<p>I should not lose my hair! My mind maybe, but not my hair. Nausea will be an issue but there are meds (and marijuana) for such things. One of the stranger side effects is that cold will be painful.</p>
<blockquote><p>Now for the peculiar part—this platinum drug has a particularly unusual side effect, neurotoxicity exacerbated by cold temperatures. Generally, the first thing that comes to mind when I hear &#8220;oxaliplatin&#8221; is &#8220;ixnay on the ice, okay?&#8221; This infamous side effect of cold sensitivity can occur within hours of the infusion and typically lasts several days. It usually lessens or goes away completely between treatments, but as the number of cycles increases, the numbness and tingling ordinarily takes longer to dissipate. This may present like typical peripheral neuropathies such as numbness and tingling or even cramping in the hands or feet; however, it&#8217;s triggered by cold. So touching anything out of the refrigerator, freezer, cold section of the grocery store, or washing hands with cold water will set off the numbness and tingling pretty much as soon as they touch it. Think about all the things in daily life this affects (cold tiles on your bathroom or kitchen floor, cold hand railings outside, etc.). So educate your patients accordingly. Luckily, the cold sensitivity only lasts for a few days, but it certainly makes you have to think a bit more about normal daily functions.</p>
<p>And it doesn&#8217;t stop with the hands and feet. The neurotoxicity can cause laryngeal spasms as well if a patient drinks cold fluids. Just like in the periphery, it typically sets off tingling on the lips and tongue pretty much from the onset of touching the cool liquid. However, it can continue and cause laryngeal spasms, which may make the patient feel like their throat is closing, or have difficulty swallowing, shortness of breath, jaw spasm, or abnormal tongue sensations. (Ixnay on the ice, okay?)</p>
<p>Because this can start quickly, avoid cold drinks even during the infusion. If you have volunteers or helpers checking on patients and bringing drinks or snacks in your infusion room, make sure they only bring room temperature or warm beverages to anyone receiving Oxaliplatin. As for the recent frigid temperatures we&#8217;ve been experiencing lately, make sure to instruct your patient to dress warm when going outside in cold weather including gloves, hats, and scarves to cover their mouth and nose to help protect against exposure to the cold air. I have had multiple patients tell me in winter months that the cold air caused symptoms—so bundle up! ~<a href="https://voice.ons.org/news-and-views/outpatient-oncology-drug-series-oxaliplatin-hates-the-cold" target="_blank" rel="noopener">source</a></p></blockquote>
<p>I hope global warming hurries up and takes over in the next few weeks &#8230;</p>
<p>At the end of the appointment the surgeon wanted to check why my asshole hurts. All the time. (Did I mention that?) With his finger he said that my sigmoid colon was not happy and he could feel it spasming. The sigmoid colon is typically not reachable in this manner, but I am missing about a foot of colon and the sigmoid has been re-positioned and attached to my anal canal. And apparently it is not happy. That makes two of us. It should calm down at some point. Hopefully I will too.</p>
<p>I turn 60 on Monday. I made it and was not always sure I would.</p>
<p><iframe loading="lazy" width="640" height="360" src="https://www.youtube.com/embed/lCpaY0a6M64?feature=oembed" frameborder="0" allow="autoplay; encrypted-media" allowfullscreen></iframe></p>
<details>
<summary>Click here to see the lyrics</summary>
<p>You could never know what it&#8217;s like<br />
Your blood like winter freezes just like ice<br />
And there&#8217;s a cold lonely light that shines from you<br />
You&#8217;ll wind up like the wreck you hide behind that mask you use</p>
<p>And did you think this fool could never win<br />
Well look at me, I&#8217;m coming back again<br />
I got a taste of love in a simple way<br />
And if you need to know while I&#8217;m still standing you just fade away</p>
<p>Don&#8217;t you know I&#8217;m still standing better than I ever did<br />
Looking like a true survivor, feeling like a little kid<br />
I&#8217;m still standing after all this time<br />
Picking up the pieces of my life without you on my mind</p>
<p>I&#8217;m still standing yeah yeah yeah<br />
I&#8217;m still standing yeah yeah yeah</p>
<p>Once I never could hope to win<br />
You starting down the road leaving me again<br />
The threats you made were meant to cut me down<br />
And if our love was just a circus you&#8217;d be a clown by now</p>
<p>You know I&#8217;m still standing better than I ever did<br />
Looking like a true survivor, feeling like a little kid<br />
I&#8217;m still standing after all this time<br />
Picking up the pieces of my life without you on my mind</p>
<p>I&#8217;m still standing yeah yeah yeah<br />
I&#8217;m still standing yeah yeah yeah</p>
<p>Don&#8217;t you know I&#8217;m still standing better than I ever did<br />
Looking like a true survivor, feeling like a little kid<br />
I&#8217;m still standing after all this time<br />
Picking up the pieces of my life without you on my mind</p>
<p>I&#8217;m still standing yeah yeah yeah<br />
I&#8217;m still standing yeah yeah yeah</p>
<p>I&#8217;m still standing yeah yeah yeah<br />
I&#8217;m still standing yeah yeah yeah</p>
</details>
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		<enclosure url="https://www.cancer.gov/PublishedContent/Media/CDR/media/731255.mp3" length="21989" type="audio/mpeg" />

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		<title>Oh man, did that ever suck</title>
		<link>https://disableddad.com/oh-man-did-that-ever-suck/</link>
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		<dc:creator><![CDATA[DisabledDad]]></dc:creator>
		<pubDate>Fri, 12 Oct 2018 02:19:02 +0000</pubDate>
				<category><![CDATA[Hospital]]></category>
		<category><![CDATA[My body]]></category>
		<category><![CDATA[My dealing with it]]></category>
		<guid isPermaLink="false">https://disableddad.com/?p=1116</guid>

					<description><![CDATA[I apologize for the silence. My admission for the surgery was about four days longer than expected. I was finally discharged and was home for a few days; that is when I wrote the previous blog post. Shortly thereafter my stoma decided to get blocked. Spasms, swelling or whatever in my small intestine due to [&#8230;]]]></description>
										<content:encoded><![CDATA[<p>I apologize for the silence.</p>
<p>My admission for the surgery was about four days longer than expected. I was finally discharged and was home for a few days; that is when I wrote the previous blog post.</p>
<p>Shortly thereafter my stoma decided to get blocked. Spasms, swelling or whatever in my small intestine due to surgery and caused everything to back up. Needless to say, I went downhill fairly quickly. The surgeon called and had me readmitted to the hospital.</p>
<p>That was a tougher stay in some ways. I really hit rock bottom as they say mentally if not physically.</p>
<p>After close to a week I came back home, again. Things seem to be working (at least between my mouth and my stoma) and I am trying to get back to life. For a while at least.</p>
<p>I will fill in the gaps as I now get ready for some heavy duty chemo in two weeks.</p>
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		<title>They took part of my colon, I gave them a piece of my mind.</title>
		<link>https://disableddad.com/1110-255/</link>
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		<dc:creator><![CDATA[DisabledDad]]></dc:creator>
		<pubDate>Wed, 26 Sep 2018 13:15:21 +0000</pubDate>
				<category><![CDATA[Hospital successes]]></category>
		<guid isPermaLink="false">https://disableddad.com/?p=1110</guid>

					<description><![CDATA[Actual email, only names have changed. I was a patient on Rockman 5 from September 13 until this past Friday, September 21, 2018 following colorectal surgery. I would like to take this opportunity to share some thoughts about the care I received as well as your staff in general and in specific. In an effort [&#8230;]]]></description>
										<content:encoded><![CDATA[<p>Actual email, only names have changed.</p>
<div id="email">
<blockquote><p>I was a patient on Rockman 5 from September 13 until this past Friday, September 21, 2018 following colorectal surgery. I would like to take this opportunity to share some thoughts about the care I received as well as your staff in general and in specific. In an effort to have some credibility, I will tell you that I have been on an unusually high number of hospital floors and wards partially because of my two severely disabled 25 year-old children (four hospitals just with them), my own and close family member&#8217;s hospitalizations, and some of my past professional trainings.</p>
<p>As a firm believer that it is fairly easy to be an okay nurse I am never surprised that many floors and units are mainly composed of okay nurses. They usually (hopefully) have a couple of good nurses and few (if any) great nurses. Part of that is unfortunately due to the Peter Principle.</p>
<p>I found very few okay nurses on Rockman 5. Not only do you have a very high percentage of good, and even great nurses the staff from &#8220;top&#8221; to &#8220;bottom&#8221; are also of high caliber. The PCTs on the floor are equally dedicated, involved, professional, and more. To start with my first (and potentially only) complaint, the staff photograph-board was removed the day before I left. I had planned on taking a picture of it so I could attach names to this email. I will do my best, but my mind was not totally clear last week.</p>
<p>All the nurses showed professionalism and when an issue ever came up that they were not 100% confident about, they would return with someone better acquainted with the situation. When my IV was removed and Kathy was dealing with what I now believe to be phlebitis from one of the IV meds, the next thing I knew she had members of the IV team in there. Is that what should have happened? Yes, of course. Is that what would have happened elsewhere? Not always. Kathy was my nurse for multiple shifts and is absolutely one of your vital gems, if not yet a great nurse, soon to be. She helped with any and all issues, professionally and competently. A wonderful demeanor, empathy, and personality, obvious knowledge and the appropriate level of confidence.</p>
<p>Emma is another nurse I need to mention. She is simply incredible in many of the same areas as Kathy and her education is very impressive. She is kind, considerate, intelligent, professional, empathetic, and hopefully she will not be swallowed up by the Peter Principal and will continue to offer such a high level of care directly to patients.</p>
<p>I was given a head&#8217;s up about Annie. I was told I would like her and that she was one of the most experienced on the floor (in terms of tenure). During her shift I had a problem and related it to Annie. A doctor became involved and, in my opinion, acted not only non-professionally but immorally. I do not want to get into that in this email (I may file a complaint) but it turns out that Annie pursued and found a solution to the issue. Words cannot explain what that did for me, mentally and physically, while in the midst of dealing with an NG tube, post-op stress and discomfort, etc. Another great nurse, for so many reasons.</p>
<p>I was a bit taken aback at the start of one shift when it appeared the hospital had sent a &#8220;financial guy&#8221; to my room. No, it was Willie <img src="https://s.w.org/images/core/emoji/14.0.0/72x72/1f609.png" alt="😉" class="wp-smiley" style="height: 1em; max-height: 1em;" /> I am sorry that he was only on one shift during my hospitalization, I would have enjoyed getting to know him a bit. Definitely making a special request for him to be one of my nurses next time, but then again, hopefully there is no next time.</p>
<p>Alexander was another nurse who deserves kudo&#8217;s. Between his knowledge of his profession, empathy, caring, and ability to anticipate what I may need, there is nothing to say other than he, too, is a vital member of your team. Vital to patients at the very least.</p>
<p>If you are wondering what it takes to be a great PCT, just shadow Pamela for a day. What makes the difference between an okay PCT and a great PCT? I can start by saying empathy and caring. Innately understanding people and spoken and unspoken cues. Add simply doing your job well, efficiently, and anticipating what may be needed next. She is as essential to your team as any other member and my time on Rockman 5 would have been more difficult without her. It would be wonderful if she moved on to become a nurse, but actually, it would also be less than wonderful to lose such a PCT.</p>
<p>The entire staff appears to work together as a cohesive team. I have no doubt there is a lot that I did not see, and shouldn&#8217;t, but what I did see is not often seen in a team this size. The staff enjoy their respective jobs, they have respect for each other, and actually are a team. This works to their benefit, the hospital&#8217;s benefit and to the most important benefit in my opinion, mine.</p>
<p>That said, there are two PCTs who could probably benefit from a very different type of work, one doctor I very well may file against, and a nurse or two who would benefit from some retraining, but isn&#8217;t that always the case?</p>
<p>Whatever you are doing, it is working. And others are not mentioned because you took down the photo board and I can not be sure of names and actions.</p></blockquote>
</div>
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		<title>Best sleep I have had in a while</title>
		<link>https://disableddad.com/best-sleep-i-have-had-in-a-while/</link>
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		<dc:creator><![CDATA[DisabledDad]]></dc:creator>
		<pubDate>Mon, 24 Sep 2018 20:28:35 +0000</pubDate>
				<category><![CDATA[Hospital]]></category>
		<category><![CDATA[Hospital nightmares]]></category>
		<guid isPermaLink="false">https://disableddad.com/?p=1107</guid>

					<description><![CDATA[I went into surgery Thursday morning. It was around 7:30 AM when they wheeled me away. I don&#8217;t remember much after that (actually nothing), maybe because I was sedated immediately. The surgeon called Inanna 7 hours later. Surgery went very well from his point of view but the extended time was due to the radiation [&#8230;]]]></description>
										<content:encoded><![CDATA[<p>I went into surgery Thursday morning. It was around 7:30 <span style="font-size: 10pt;">AM</span> when they wheeled me away. I don&#8217;t remember much after that (actually nothing), maybe because I was sedated immediately.</p>
<p>The surgeon called Inanna 7 hours later. Surgery went very well from his point of view but the extended time was due to the radiation damage to some of the tissues. The reason for the 8 weeks of nothing between chemo-radiation and surgery is for the tissues to heal otherwise the surgeon is dealing with somewhat withered problematic tissue. For whatever reason, mine was not as healed as expected so it complicated the procedure somewhat. That aside, overall the surgeon was very happy. Me? I was asleep.</p>
<p>Around 5 o&#8217;clock in my room the nurse came with my Lopressor, a heart medication. I asked her why and she double checked the order in the computer. She said it was one of the meds I take at home.</p>
<blockquote><p>No, I don’t take Lopressor, I have no idea what it is, and I am refusing the medication.</p></blockquote>
<p>She returned about 20 minutes later and said it was ordered &#8220;in error.&#8221; That made me feel better.</p>
<p>At some point that evening I was sleeping. A young guy came in and woke me by saying &#8220;blood pressure!&#8221; I lifted my arm a bit and felt the cuff go on. With my eyes still closed, the cuff tightening, there is a scraping at my teeth. What the fuck? I knocked it away and opened my eyes. He then said &#8220;temperature.&#8221; Right, asshole.</p>
<p>I quickly learned that they take vitals every four hours, round the clock. That&#8217;s fine. I also learned that every other staff member says &#8220;Vitals!&#8221; when they come in, except one, the aspiring <a href="https://www.imdb.com/title/tt0074860/?ref_=nm_flmg_act_29" target="_blank" rel="noopener">Christian Szell, DDS</a>. And this is not my foggy memory or my then drug induced state, it is how he did it every time.</p>
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		<title>&#8220;There is nothing like staying at home for real comfort.&#8221; ~Jane Austen</title>
		<link>https://disableddad.com/there-is-nothing-like-staying-at-home-for-real-comfort-jane-austen/</link>
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		<dc:creator><![CDATA[DisabledDad]]></dc:creator>
		<pubDate>Sun, 23 Sep 2018 00:17:40 +0000</pubDate>
				<category><![CDATA[Hospital]]></category>
		<guid isPermaLink="false">https://disableddad.com/?p=1103</guid>

					<description><![CDATA[I am home. I got here yesterday, just before dinnertime. It has been a tough road. Had everything gone smoothly I would have been home four days earlier, but alas, it did not work out that way. As everything in life, this too has passed and here I am. That said, I was on the [&#8230;]]]></description>
										<content:encoded><![CDATA[<p>I am home. I got here yesterday, just before dinnertime.</p>
<p>It has been a tough road. Had everything gone smoothly I would have been home four days earlier, but alas, it did not work out that way. As everything in life, this too has passed and here I am.</p>
<p>That said, I was on the phone with my surgeon at 2 <span style="font-size: 10pt;">AM</span> discussing if I need to ambulance back. We decided to wait it out under certain parameters; today is going well.</p>
<p>Yes, I have a lot of posts to write from my notes and they will soon come fast and furious. I will give you the thirty second summary here:</p>
<ul>
<li>Surgery went two hours longer than predicted, but went well.</li>
<li>Radiation did a heck of a job on my tissues, hence the added two hours.</li>
<li>Good thing I was awake and questioning the first hour I was in a room. &#8220;No, I don&#8217;t take Lopressor, I have no idea what it is, and I am refusing the medication.&#8221; Ooops, a medication error. I guess they do really happen.</li>
<li>A day of really nasty retching ended with three attempts at an NG tube, some relief &#8230;</li>
<li>Only to discover a blockage elsewhere to be resolved.</li>
</ul>
<p>I could go on, and will. I&#8217;ll discuss those items and more in the next few days as well as living with a temporary ostemy bag. There is one thing I do want to say clearly though&#8230;</p>
<p>There is an incredible staff on that surgical floor. The doctors, nurses, assistants, the entire team is top notch. I have spent 25 years with both my severely disabled kids in and out of a total of four hospitals. I have had personal interactions in the handful I and those close to me have been in over the years. I have worked in emergency rooms, etc. This staff was (is) top-notch and does show some of the advantages of a big city, Ivy League medical teaching hospital.</p>
<p>So you will be reading about the good, bad, and ugly. And I do not have pathology reports yet, so don&#8217;t know the odds of my cancerfreeness.</p>
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